Little Guy had his broncoscopy yesterday, which really didn't find too much. His trachea isn't as wide as it should be because it's being compressed by an aorta (or something like that), but it's still wide enough that he shouldn't be having the troubles he's been having.
The doctors waivered about whether to go back and reconsider if his hamartoma (brain thingy) was the problem, but discussion determined that it is indeed not the trouble. So we've ruled out any kind of neurology issues and narrowed it down to just pulmonology.
Last night, they started him on an infant C-pap machine, and he hates it. REALLY hates it. It's interesting because he breathes better with it in terms of the retractions, but his sats drop quickly when he's on it. So, I'm not sure what that's all about. Maybe he needs to up the O2 concentration on it?
Today, they also drew some labs on him and are looking into his thyroid. I'm doing a little research and am finding some things that actually sound a little bit like him having to do with that. (infantil myxedema?) So, I'm interested to see what the labs show. I'll know more about that later today.
So, we continue to sit and wait. We've felt your prayers and your love and so appreciate it. I'll update again as soon as I can.
This is the wacky story of our wild and crazy lives with six insane kids. Two are Deaf. Two have had major health issues. At least one is plotting to take over the world. Two are the reigning princesses of the house. Read and laugh about our lives to feel better about your's.
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